Challenges for the girls

It seems that all the doctors’ appointments are for the girls of the group at present.

   Cuddles for Miss N

With Miss K back on the normal ward with the rest, even though she has still got her cast, you’d think we would have less visits to the sick ward now. Alas, Miss N’s face is still an issue and this week she seemed very irritable with it and it was flaring up more. With cracked, bleeding lips and edges of ears affected too, I felt enough was enough. More areas of redness and dryness appeared, so we went to the nurse and a visit to the doctor was planned for the day after. We went in the morning and she was super stressed and itchy. The doctor gave us cream, tablets for the itch and a medication for the cracked lips. We will see. So far the treatment is doing very little. After applying the creams, it’s better for an hour and then worse or the same, which is what it was like when I was applying Vaseline and when I was using hydrocortisone and Sudocrem. Nothing yet seems to produce healing and to reduce the discomfort to nothing.

 

Miss N has a follow up appointment next week, on the 1st November. 

I have noticed again that after a visit to the local hospital, my throat is sore and I have a runny nose. The air temperatures there are so uneven on the different floors and rooms, it really is clear that it’s not the greatest environment for my health. I’m not as run down this time as I was last time, so I hope to be able to kick these symptoms before they become anything more serious by means of preventative meds and vitamins.

 

Miss K’s cast is getting soft at the back and cracks on the knee of the full leg are appearing. This is as well as the challenges of treating the skin under the case for sores. The ward mums didn’t realise the nappy had to go inside the cast to prevent urine getting on the cast, but now they do. Also they are aware of the four good positions she should be rotated into, so the wounds and her tired muscles get a rest from the pressure. She sleeps well when on her front, but is more grumpy than usual for sure.

 

Miss K is at the doctor’s on the 30th October to hopefully have the cast removed and then we can start the strength building season for these hips and legs.

Miss A was not able to get her planned surgery due to low weight. Since leaving the hospital, in all the busyness, we have managed to get her weight up 1.2 kg. She is now 11 kg. The doctor said no surgery till she is 13 kg. The ward mums and I work to get her extras and top ups when we can. We communicate on what amounts she had in each meal and what times they were taken to try to get the optimal opportunity of her being willing to eat. We have added Nutrini milk drink too, which she will take through a syringe most of the time and yesterday a ward mum was willing to give it to her in the evening.

    

 Miss A was not able to get her planned surgery due to low weight. Since leaving the hospital, in all the busyness, we have managed to get her weight up 1.2 kg. She is now 11 kg. The doctor said no surgery till she is 13 kg. The ward mums and I work to get her extras and top ups when we can. We communicate on what amounts she had in each meal and what times they were taken to try to get the optimal opportunity of her being willing to eat. We have added Nutrini milk drink too, which she will take through a syringe most of the time and yesterday a ward mum was willing to give it to her in the evening.

 

Miss A has an appointment the Thursday after Miss N, on the 8th November, so we hope and see.

All in all, the girls’ needs and appointments are the main cause of lack of consistency with the care I can provide. Advocating for the girls in these ways though is important and worth the trips.

 

Your prayers are welcomed for all three girls: Miss N’s face to heal and her happiness to be restored, Miss K to be out of her cast soon and the rehab to go well, and Miss A to gain weight at the right time for good choices to be made concerning her well being and treatment for her hips. Also pray for peace of heart for the boys, as they wait hoping to get my quality time, and for me to stay well and not get flu again.

Thank you all for your prayers.

Nicola Anderson.

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